We are very excited to welcome you to our 21st Annual U.S. Conference in Rosemont, IL. Join us for this long weekend of support, education, and community.
Scroll down for more information, including the course overview, registration, hotel details, and conference agenda.
For 20 years, our conference has offered incredible opportunities to meet other clusterheads and to learn from experts about how to manage this challenging condition. We hope you will join our family.
The conference will begin on Thursday afternoon with small group discussions. Join us in the evening for the Director's Reception, Registration, and more small groups to help you get oriented and meet other attendees.
Friday and Saturday will be full days of educational and support-focused presentations. Many presentations will be eligible for CME/CEU credit.
Sunday morning will include social gatherings.
Your hotel stay includes daily breakfast and a happy hour each evening.
Lunch will be provided by Clusterbusters on Friday.
On Saturday evening, friends old and new are cordially invited to join us for dinner and our award ceremony. This year's theme is Halloween. Attendees are encouraged to dress up and join in the fun!
We want participants to be fully aware that in the sessions and social settings during this conference, difficult topics such as suicidal ideation, anger, trauma, and self-harm are sometimes discussed by participants and speakers. This conference is intended to be a safe space where such topics can be discussed openly, as they are common themes among clusterheads and their caregivers. We believe it is important to maintain this open dialogue as it is part of creating a community where everyone feels understood, and nobody has to explain themselves.
Kids deserve a space of their own.
This year we are kicking off the inaugural Pediatric Program at our conference. This program is being organized in partnership with U.S. Pain Foundation and their amazing Director of the Pediatric Pain Warrior Program, Casey Cashman.
Who is it for?
Kids and teens ages 8 and up who are living with cluster headache and/or who have a family member with cluster headache.
What activities will they participate in?
Notes:
Oxygen Demonstration - Conference Room 205 (2nd Floor - Atrium Level)
Mr. Bill Mingus
Registration Open - Ballroom Foyer (Ground Floor)
President's Reception - Atrium
Introduction Support Sessions
Gary Gibson - Walden
Joe McKay - Conference Room 235
Bob Wold - Board Room East
Julia Gibson - Board Room West
Casey Cashman (Family Session) - Conference Room 205
***Sign up will be sent before event***
Hotel's Breakfast Served - Atrium
Registration Desk Open - Ballroom Foyer
Oxygen Demonstration - Conference Room 205 (2nd Floor - Atrium Level)
Mr. Bill Mingus
Grow Demo - Conference Room 235 (2nd Floor - Atrium Level)
Mr. Gary Gibson
Welcome & Announcements - Ballroom
Introductions - Ballroom
Mr. Steve Keschinger & Mr. Andrew Cleminshaw
Two Hearts: Medical trauma through the eyes of a caregiver and clincian - Ballroom
Ms. Theresa Webster
Break
Pediatric Session: Icebreaker Activity - Walden Room
Ms. Casey Cashman
***Parents must sign kids in at the beginning of this session.***
Current Treatment Discussion with Audience Q&A - Ballroom
Dr. Brian McGeeney
After the Pain - Ballroom
Dr. Tammy Isaac
Pediatric Session: Policy & Advocacy Discussion - Walden
Eileen Brewer & Casey Cashman with special guest, Julienne Verdi
***Parents must sign out kids at the end of this session (can come a little early if they want)***
Lunch (Provided) - Ballroom
Family Perspective - Ballroom
Mstr. Micah Fisk & Mrs. Erin Fisk
Cluster Headache: Neural mechanisms & neuromodulation - Ballroom
Dr. Patricia Olson
Discussion/Q&A - Ballroom
Break
Pediatric Programming: Living Between Headaches: What kids feel, need, and want grown-ups to know - Walden Room
Dr. Tammy Isaac
***Parents must sign in kids at the start of this session***
Clusterbusters Updates - Ballroom
Mr. Bob Wold
Cluster Headache Intelligence - Ballroom
Mr. Darshan Ramanagoudra
Pediatric Session: Art Therapy: Pumpkin Painting - Walden Room
Casey Cashman & Erin Fisk
***Parents must sign out kids at the end of this session.***
History of Cluster Headache Treatment - Ballroom
Dr. Alan Rapoport
Discussion/Q&A - Ballroom
Hotel Daily Reception - Atrium
Schor Safe Room Sessions
Mr. Joe McKay - Conference Room 235
Mr. Gary Gibson - Walden
Mr. Bob Wold - Board Room East (Clusterheads Only)
Mrs. Julia Gibson - Board Room West (Caregivers Only)
Ms. Casey Cashman - Conference Room 205 (Kids only - Parents must sign kids in and out)
***Sessions Require Sign-up at Registration Desk***
These sessions are small-group sessions where attendees are encouraged to speak freely about the realities of living with cluster headache in a safe space. There will be sessions for clusterheads only, caregivers only, children only (led by a trained professional), and anyone who wants to attend.
Hotel's Breakfast Served - Atrium
Registration Desk Open - Ballroom Foyer
Grow Demo - Conference Room 235
Mr. Gary Gibson
Welcome and Announcements - Ballroom
Caregiver Perspective - Ballroom
Mrs. Rhonda Pace
Histamine. Really?! - Ballroom
Dr. Fred Freitag
Group Picture - Atrium
Break
Survey Updates - Ballroom
Dr. Emmanuelle Schindler
School Accommodations - Walden Room
Ms. Casey Cashman & Ms. Eileen Brewer
***Parents must sign kids in at the beginning of this session and must sign kids out at the end of this session.***
Cluster Headache Current and Future Treatments - Ballroom
Dr. Mark Burish
Discussion/Q&A - Ballroom
Break for Lunch on Your Own
Pediatric Session: You Are the Point - Walden
Author Ash Vyvie Nyx
***Parents must sign children in at the beginning of this session and out at the end of this session.***
Panel Discussion: Multidisciplinary Challenges with Cluster Headache: Misdiagnoses, Attack Triggers, and Beyond - Ballroom
Dr. Brian McGeeney - Moderator
Dr. Rick Godley, Dr. Evan Jameyfield
DMT Discussion - Ballroom
Mr. Eric Frey, Mr. Kevin Lenaburg, & Mr. Bob Wold
Discussion/Q&A - Ballroom
Break
DMT Survey Updates - Ballroom
Dr. Erik Zorrilla
Pediatric Session: Creative Writing - Walden Room
Pediatric Session: Wrap Up
Ms. Casey Cashman & Ms. Ash Vyvie Nyx
***Parents must sign kids in at the beginning of this session and out at the end of this session.***
Current Policy & Advocacy Updates - Ballroom
Mrs. Julienne Verdi & Mrs. Eileen Brewer
Discussion/Q&A - Ballroom
Announcements - Ballroom
Hotel Daily Reception - Atrium
Dinner/Awards/Auction & Raffles - Ballroom
Farewell Breakfast - Atrium
Embassy Suites by Hilton O'Hare-Rosemont
5500 North River Road, Rosemont, IL 60018
847-678-4000
If at all possible, please order oxygen from your supplier to be delivered to the hotel on your behalf.
For those who want to learn about oxygen or do not have vacation service through their provider, oxygen will be available at the conference. You can check out a tank for use in your hotel room, and there will also be oxygen close to the ballroom space in case you have an attack during the meetings.
Please bring your regulator, wrench, and mask. We will not be able to supply these items.
Applications are closed
Are you concerned about traveling with cluster headache? Check out our Webinar to learn how well-traveled clusterheads manage their disease while on the road.
Please review ticket options and descriptions carefully before selecting.
Single Attendee (no CME): $150
Single Attendee (w/CME): $200
Fellow/Resident (w/CME): $100
Guest of Attendee (add-on): $125
Child (add-on, ages 8-17, children under 8 are free):$50
This video shows the impact of the Clusterbusters Annual Conference.
